It’s been several weeks since my last health update here, so guess what you get today?
Actually, much of it is good news.
On the bad side: I did have a major decline in June before the next plateau arrived, and I may be in another one now — I’ve been pretty feeble this past week.
On the good, the depression induced by all of this has lifted. I feel like myself again, just a very tired version. There’s still sometimes fear in the dark, but not like it was for awhile.
Also on the good, I have a stent for the clogged artery scheduled this week. By catheter, so easy procedure. One night inpatient to make sure nothing goes sproing. The surgeons elected not to fix the other, less acute, problem, even minimally invasively, until the neuro problem is being treated. If anything went badly, the recovery would be severely hampered by my incapacity. But that’s fine — it hasn’t caused me problems in 40-odd years, even if it likely will eventually.
The next step on the suspected LEMS (the neuro problem) is more testing at a regional hospital next week. I can’t see the doctor that day — that appointment isn’t until the end of August. But I am hoping he will be willing to prescribe interim treatment on the basis of the test results. And I’ll get myself on his standby list.
So there’s still no treatment for the LEMS, and I’m still declining in capacities. That’s the bad. But finally things are moving. There are also changes in the home situation. By a week or so from now, Jalan and I will be moving to the downstairs master that she’s been working her fingers to the bone renovating. I won’t have to navigate stairs, yay! One of the main advantages is that I can do other things (like get my own ice water, or microwave a meal, or take the dog to pee) without having to factor in the fatigue from using the stairs. That, and if there’s another substantial decline before treatment can kick in, the stairs would be a major problem.