Ok, diving into this. My initial physical therapy appointment is Monday. I’m reviewing CFS-specific resources, both to inform the PT and to start to track.
My baseline is mediocre-to-fair (for me), between the sprained ankle, the stress of moving, and the ensuing opportunistic infections, including a nagging cough. I’m also wrestling with a new bout of insomnia. I’ve been doing no significant exercise for the last two months with the combination of the above, but still maintaining daily activities, including stairs in the home, chores as tolerated (though I’ve been reprimanded when I pushed beyond that), walking the dog briefly, and light outings.
On CFS/energy scales, my current level is just at the low-end of the “in recovery” zones.
One of the challenges is that hitting the anaerobic threshold, or even spending much time in the aerobic zone, of cardio exercise will frequently result in relapse. So the cardiac rehab I did last year was probably exactly the wrong thing. Some of the recommendations for starting are 3min up / 5min down, repeat. So regular gym-going is also inefficient/possibly harmful.
But the ankle is healing (still splinted), and the other things are coming under control. I’m off of daily caffeine (with intermittent use, because coffee), seldom drink, and never smoke. I do not yet have an HR or activity monitor, and budget is very lean, but I’m looking at options that let you set your own target HR (see previous paragraph).
I’m on moderate doses of B6, B12, and D3, all of which tend to be low and hard to raise in CFS, but haven’t had lab tests on those in some time. It doesn’t help that, at last check, my insurance wouldn’t pay for Vitamin D testing. Though if it’s indicated by CFS, that might help. My diet has been mediocre during the move, but is coming back to where I want it, with more poultry for meats and plenty of produce. My weight and waistline are trending the right direction again.
Advice and (especially) encouragement welcome!